Contact Information

Now that I have an email  for my project, you can contact me if you would like to find something out or by a bracelet. The email is projectendduchenne@gmail.com.

Winter Break Goal 2/13/14-2/23/14 Achieved

Yesterday, my mom posted on Facebook about my Bar Mitzvah Project. Within minutes, people wanted to buy bracelets one by one by one. The money that is getting collected from this goal is $32. It is amazing. The awareness for Duchenne has gone up. Or maybe it is just because it is a Bar Mitzvah project, I don't know but it makes me feel good inside that I am helping Kevin.

Bracelets and Thank You Notes

The thank you notes and bracelets look like this.

The bracelet preview is underneath.

 

 

The thank you note preview is below.

Winter Break Goal: 2/15/14-2/23/14

Over my winter break , my goal is to sell at least 5 bracelets or spread the word about Duchenne to 10 people. I also recommend you spreading the word about Duchenne too! Help raise awareness about Duchenne Muscular Dystrophy.

Super Bowl Sellday

On Super Bowl Sunday I sold 7 bracelets for $14. At the party I went to, there was a former Giants player. His name is Karl Nelson.  I have now overcome my fear to ask people to buy bracelets. Over all so far I have sold 21 bracelets for $44. More donations means more help. Lets find a cure to END DUCHENNE!

                                                   Karl Nelson and Me in 2012 when I met him.

What is Duchenne Muscular Dystrophy?

Duchenne Muscular Dystrophy is a muscular dystrophy that affects 1 boy out of 3,500 boys born. It doesn't affect girls at all.  Duchenne shows it sign at about ages 1-3 when the boy has trouble walking. Later in life, around ages 10-14, the boy usually can't walk. By their later teens, they don't really have the upper body strength that they had when they were 5 or 6. This doesn't allow the boy to move his arms anymore. When the respiratory system weakens, they need constant support. This and ultimately hurts their heart and lungs, two organs vital for life. Unfortunately, there is no cure for Duchenne yet. However, there are medicines that can slow down the process of the muscles weakening.

Brainpop about DMD. Tim and Moby

talk about how Duchenne affects the boys

body in kid friendly terms.

The link below can give you more information about what happens in the body of a child with Duchenne.

http://www.parentprojectmd.org/site/PageServer?pagename=Care_stage