Sometimes We Take Our Personal Physical Mobility For Granted

I am a very active person. I am a runner, a tap dancer, and a baseball player. Also, almost everyday, I shoot hoops for fun and play hockey and soccer in my driveway. As I have been working on my project to raise awareness for Duchenne, it occurred to me that Kevin and DMD kids can't do what I do. I saw a video of a muscular dystrophy convention and everyone was dancing. I take for granted that I can move my legs and dance and run. I feel sad about Kevin's condition but after I saw all the Duchenne kids smile, I still felt sad but remembered what he can do things that make him happy.

I often ask my parents to do things that I am too lazy to do myself. They will tell me I am capable of doing it and that I should do it: like getting seconds of dinner from the kitchen. This often makes me mad that they won't do it for me... then I think about Kevin and other kids in wheelchairs who don't have the same mobile freedom that I have. Next time, I am going to think twice before I ask my parents to do something I can do myself and be glad that I can, not mad that they won't do it for me.


This is the video of the Duchenne kids dancing. Look how much fun they are having. Please click the link to view. If I can upload the video without the link I will edit the post and put it up.

                                    https://www.youtube.com/watch?v=srm2vACjN0c



                              This is a video of me dancing. I am proud and grateful of what I can do.

My Duchenne Instagram Account as of July 22,2014

Recently, my Instagram account for my project wasn't getting followers. I was upset about that because I want people to know about it. I should have told more of my friends though. Now I realize that I have to tell more of them to sell the bracelets and get followers on my account. Last week, I came home from camp and I checked my iPod. When I checked, a notification said I have 5 new followers. That's not all. Within the next couple of days, I also received 4 more followers. This excited me because out of no where I got so many followers. If you have an Instragram account and are already following me, help spread the word and let people know about my project. If they want to contact me, have them email me a projectendduchenne@gmail.com. I am still selling bracelets and still have a lot of pending sales. Please help spread the word about Duchenne.